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Sunday, October 25, 2009

LOTS and LOTS of Doctor's Appointments...

I haven't actually posted the things that have been going on in our life lately. Probably because I don't quite know how I feel about all of them... I'm a little nervous - scared - of what life is going to bring about next. Which trial we will be facing. How we will survive this one...

A major thing?
I had taken the kids out of town to go see my Grandma Bagley and my Grandma and Grandpa Barlow. The kids love to play on the Bagley Farm and we made a trip into Richfield to see my other Grandparents, because we haven't gone since Robyn got sick (over 3 months ago!). While we were gone, Jeremiah was laid off from Okland Construction. Crap. I know... We are hoping it will be a blessing in disguise - that since we no longer make too much for Medicaid (um, yeah, we don't make anything but unemployment), that maybe it could be backdated and cover when Robynson got sick... Maybe... Hopefully? :) We've applied for Medicaid, Food Stamps, Unemployment - all that. Never done it before, so hopefully we can get it done and be approved...

Another thing we have been doing? Doctor appointments... For the last 2 weeks, we have had more doctor appointments than I care to have in a year.

DarTanion
Since we didn't have insurance when DarTanion turned 6, we put off his 'well child checkup' until we did. We went in on Wednesday last week to just make sure he's 'normal' and healthy. We've had the same Pediatrician since DarTanion was born so it's safe to say that he knows my kids. Every year, we've noticed signs of ADHD (Attention Deficit Hyperactivity Disorder). Every year we have said that we'll just work with it. We'll just try the behavior modification things. So this year, when it came up again but the fact that it's getting harder and harder for me to sit down with him (and get HIM to sit down) to do homework or read or anything he doesn't want to do - I decided that we should try something different. I set up a follow up appointment to have a consult for ADHD. Jeremiah, DarTanion and I sat down with Dr. Dave to see what he thought. We discussed the problems, the good points, the bad points, the 'i can't do this anymore' things... The fact that for DarTanion to read an entire 20 page book (a simple, easy, 20 page book) that it takes about an hour. He can't sit still. He can't look at the page and concentrate. He wanders off. And if by some miracle he reads a page - he can't remember what he just read. It drives me crazy. The kid is in school from 8:30am til 3pm then if I make him read, it's an extra hour of school - PLUS the home work the teacher sent home. I just can't do it anymore. Call me a bad mom or whatever, but I'm going to try the drugs.

We decided to try an ADHD drug. We're starting out at a really low dosage and we're going to see how it turns out. I've talked with his teacher - who agrees that DarTanion has concentration problems - and she is completely supportive - which is SO nice because I know a lot of people don't agree with drugging your children. To be honest, I just want him to be successful and if I see that the meds don't seem to help, then I'll take him off of them. I don't want a zombie child - just one that can concentrate!!! So, tomorrow (10/26/09), we will be starting him on Vyvanse.

JEREMIAH
Jeremiah has gone to the doctor a few times this month for his hands. His right arm (hand) will go numb and he'll end up dropping whatever he was holding - which was a problem when he was swinging a hammer! He went in to Dr. Olson who told him that he definitely has Carpal Tunnel in his Right Hand (and most likely starting in his left) and that he needs surgery in his right hand to fix it. SO, since we have insurance and he is laid off, he went in on Thursday last week for surgery to fix it. What better timing? He doesn't have to recover to go back to work right now - just be available if work comes up and keep looking in the mean time!

I teased Jeremiah while they were getting him ready for the surgery. They had to shave his wrist and hook him up to a couple of IVs and give him pain meds and all sorts of fun stuff. In our marriage, I've had 3 kids, a stomach scope and dental surgery. He's only had his wisdom teeth out, so it was TOTALLY my time to tease him!!! I took a couple of GREAT pictures specifically for this blog...

Isn't he brave? :)
He seems to be healing just fine and dandy. He's over done it a few times (of course) but he's really trying to take it easy and let it heal. He will sometimes 'forget' that he can't do something - like pull on the van doors to get them open - and it hurts him, but he's been good about icing it and taking pain meds when it becomes too much... There are some nasty (HUGE) stitches underneath a big bulky brace. My poor hubby... He's a trooper, though, and I know that he'll be just fine. :)

ME & JEREMIAH
Robynson's heart doctors wanted Jeremiah and I to go to an Adult Cardiologist and have an Echo done to rule out a familial (genetic) heart problem. We got an appointment at the Cardiology Clinic here in Provo with Doctor Allen on Wednesday. We each had some blood work done and an EKG done by a really funny old nurse. She really put our nerves at ease. The EKG looked fine, but he wanted to do an MRI on our heart (for both of us), so we had that done on Friday. No one really told us what to expect for that and since we were busy with Jeremiah's surgery the day before, I never looked it up online. But holy crap - that is not a fun experience! First off - no caffeine or chocolate for 24 hours. I about died. :) Then when we were actually getting the MRI stuff done, we had to have 2 IV's (one for each arm), have about 40 scans in the MRI machine (which is like an inch above your face - no joke), hold our breath a lot, have all sorts of monitors attached all over your chest by a young girl and a young cute male nurse (totally humiliating!), dye inserted in your IV along with a stimulant -- and for me, a huge panic attack right as you are put into the machine! I was able to calm myself down, but yeah, it freaked me out. Jeremiah made a great analogy when he said "so that's what it feels like to be buried alive!" Yep. I'm pretty sure it is... Except it's light... I'm glad it's over (for now, I guess). We'll get the results this coming Wednesday. I don't know what to hope for. I'd like to say that neither of us have a heart problem, but that means we still have NO CLUE what is wrong with our little Robynson... I'd love to know how to make her better, but I don't necessarily want to find out that one of us has a heart problem!!!

All these not so wonderful things that could / could not be... With no job, no money, and (soon) no insurance to do them with. It will be interesting...

Ah... life. It has this funny way of going in crazy circles which aren't always fun. But still, I have my faith. I have my family. I have a crazy wonderful support system. I am SO blessed in my life. I wish I could convey to others how loved I feel and how sad I am to see others struggling with their problems... I want to give everyone a hug and just hold them and tell them that some how it will all work out. Because that's how I feel. That's my motto these days...

Somehow,
it will all work out...

4 comments:

Me said...

"when it rains, it pours" comes to mind. holy cow, you guys aren't going to know what to do with yourselves when life calms down. I like your motto, way better than having a complete nervous breakdown!! :)

Heather said...

that is a lot to have on your plate all at once. If you need someone to talk to, im here. I would like to be a part of your crazy support system :) Hope you see an improvement in Dartanion soon, hope he can sit and read a book to you and make your day :)
Good luck on the results of the mri's. Hope it sheds some light on whats wrong with robyn.Glad Jeremiah is getting better and healing. Loves, Heather

Michelle D. Argyle said...

Mandy, I just barely read this. You have had A LOT going on, and I'm so sorry I didn't get to this sooner. Somehow things will work out, that's very true. I'm going to try and find some time to call you this weekend and see how things are going. I miss you! I miss a lot of people. I'm so busy just like everybody else. *HUGS AND LOVE*

Candace said...

What a whirlwind life can be and you guys are amazing! As I've told you before, I am so proud of you Mandy! Keep up the positive attitude... we can't choose what happens to us, but we can always choose how we let it affect us and you are such an example to all of us! Love you lots!